Lupus Foundation of America

The LFA is the foremost national nonprofit health organization supporting research, education and services benefitting people with lupus, their families and health professionals. Toll-free 888-38 LUPUS (888-385-8787)

Why do we exist?

The Lupus Foundation of America is the nation’s leading non-profit voluntary health organization dedicated to improving the diagnosis and treatment of lupus, supporting individuals and families affected by the disease, increasing awareness of lupus among health professionals and the public, and finding the cure. The LFA seeks to: 1.Greatly expand the medical research effort to bring lupus under control and find a cure. 2.Translate research findings into medically sound information for health professionals, lupus patients, and the public. 3.Advocate for constructive public policies that support lupus patients and their families.

What have you accomplished?

•Led a nationwide effort to establish the first-ever Federal Working Group on Lupus that will coordinate and maximize federally supported research, education, and awareness programs. •Successfully advocated for the creation of a National Lupus Patient Registry and a $1 million congressional appropriation for start-up funds. •Partnered with the U.S. Department of Health and Human Services’ (DHHS) Office on Women’s Health (OWH) to develop a model lupus education curriculum for physicians and other healthcare professionals. •Distributed thousands of medical posters and educational materials on lupus to clinics and doctors’ offices. •With support provided by The Pfizer Foundation, developed a public awareness campaign and education program for newly diagnosed lupus patients for implementation by lupus groups worldwide. •Launched a nationwide multimedia awareness campaign that reached 70 million households during Lupus Awareness Month in October.

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